Sunday, December 22, 2024

Canada’s Politics and Government News Source Since 1989

Sunday, December 22, 2024 | Latest Paper

Building a successful rare disease strategy is our shared responsibility: stakeholder

Opinion
November 9, 2022

Opinion | November 9, 2022

FOLLOW THE HILL TIMES:

Want to make sure your whole office has the full Hill Times experience?

We have team plans available for companies, organizations, classes, Parliament Hill offices and more. Fill out this form and find out if your team is eligible for a discount.

More Opinion

Hundreds of billions in ‘contingent liabilities’ loom large over Canada

OpinionBY TOM FLANAGAN

Justin Trudeau no longer has a mandate to govern, and he doesn’t care

OpinionBY JAKE ENWRIGHT

Canada needs a stable democratic partner in South Korea

OpinionBY MIKE DANAGHER

What Canada needs in its next prime minister

OpinionBY JOSEPH INGRAM

Like it or not, the die is cast

OpinionBY MICHAEL HARRIS

Related Stories

Revolutionary change to our health care is required—and possible

OpinionBY JIMMY YANG

Patients know about pharmacare: let’s listen to them on Bill C-64

OpinionBY JOHN ADAMS, LINDA WILHELM

Doctors need the right tools to treat patients well, especially for rare diseases

OpinionBY SANJAY MEHTA

A year later, none of the $1.5B for rare disease has flowed to patients

OpinionBY DAVID RENWICK

Parkinson’s has no cure, but the government can take steps to improve patients’ quality of life

OpinionBY BOB KLAGER

Revolutionary change to our health care is required—and possible

OpinionBY JIMMY YANG

We need our health-system leaders to act courageously and fully commit to health-care reinvention to drive better patient outcomes, and a sustainable modern system.

Revolutionary change to our health care is required—and possible

OpinionBY JIMMY YANG

We need our health-system leaders to act courageously and fully commit to health-care reinvention to drive better patient outcomes, and a sustainable modern system.

Patients know about pharmacare: let’s listen to them on Bill C-64

OpinionBY JOHN ADAMS, LINDA WILHELM

Patient groups’ involvement should be built into the program, not just a one-time pre-consultation.

Patients know about pharmacare: let’s listen to them on Bill C-64

OpinionBY JOHN ADAMS, LINDA WILHELM

Patient groups’ involvement should be built into the program, not just a one-time pre-consultation.

Doctors need the right tools to treat patients well, especially for rare diseases

OpinionBY SANJAY MEHTA

The federal government must prioritize the health of Canadians affected by rare diseases, and release the promised funds for medicines to treat these conditions.

Doctors need the right tools to treat patients well, especially for rare diseases

OpinionBY SANJAY MEHTA

The federal government must prioritize the health of Canadians affected by rare diseases, and release the promised funds for medicines to treat these conditions.

A year later, none of the $1.5B for rare disease has flowed to patients

OpinionBY DAVID RENWICK

Further delays risk undermining the health and well-being of the very patients the National Strategy for Drugs for Rare Diseases was intended to assist.

A year later, none of the $1.5B for rare disease has flowed to patients

OpinionBY DAVID RENWICK

Further delays risk undermining the health and well-being of the very patients the National Strategy for Drugs for Rare Diseases was intended to assist.

Parkinson’s has no cure, but the government can take steps to improve patients’ quality of life

OpinionBY BOB KLAGER

Our nation has one of the highest rates of Parkinson’s in the world, with more than 100,000 Canadians living with the disease. Every day, 30 people in Canada are diagnosed, and that number will grow to 50 people per day in less than a decade.

Parkinson’s has no cure, but the government can take steps to improve patients’ quality of life

OpinionBY BOB KLAGER

Our nation has one of the highest rates of Parkinson’s in the world, with more than 100,000 Canadians living with the disease. Every day, 30 people in Canada are diagnosed, and that number will grow to 50 people per day in less than a decade.